Tuesday, July 28, 2009
Saturday, July 25, 2009
Inspiration pic to pick the golf clubs back up!
It was cold the day I took my portraits - this is one of my favorites
The young'uns (all of us - even Reggie)
THE BEST INSPIRATION OF ALL!
Friday, July 24, 2009
Thursday, July 23, 2009
Sunday, July 19, 2009
Monday evening, Lee's mom, granddad and grandmother came over to help with Elle. We usually go to our church class on Monday night, but we had to skip this one because Lee's heart monitor was transmitting all the data it had collected during the 3 weeks he wore it. Needless to say, we couldn't stray too far from the house. While we had so many helpers with Elle, I was able to work on Elle's closest. Our little chunky monkey has already grown out of some of her outfits!!
I received a phone call on Wednesday that Elle was approved for occupational therapy. So instead of a week without doctors, we went and saw the occupational therapist on Friday. Elle did wonderful and the therapist was so nice. She gave us some exercises to do with Elle to strengthen her neck and mouth muscles. We will be going back every Friday so Elle can work with the therapist. Friday afternoon, after I went into work for a few hours, I picked up Elle from my parent's house and went home to pack. We were supposed to be going to my parent's bay house in Matagorda, Texas for our first family trip. While I was driving home, I had hooked Elle up to her feeding tube. She ate while I drove home and everything was perfectly wonderful. Everything changed when I got home. Elle and I talked with some neighbors before I headed inside to unhook Elle and start packing. As soon as I unhooked Elle from the feeding tube, all hell broke loose. Elle was crying and screaming uncontrollably for 2 1/2 hours straight. I texted Lee and told him to come home as soon as possible because I couldn't get Elle to calm down and I was starting to get scared. I was crying. Elle was screaming - it was not a good situation. Lee got home and as soon as he did, I called our pediatrician's after hours line. An on call nurse called me back and really couldn't offer any suggestions so he had the on call doctor call me back. By this time, it was time to feed Elle again. We hooked her up to her feeding tube and 10 minutes in, Elle was screaming and arching her back. We stopped her feed. I was on the phone with the on call doctor and she told us to take Elle into the emergency room. The screaming and arching her back was no bueno. We decided to wait and see how Elle would react to her 10:00pm feeding because she stopped crying once her feed was stopped. Before Elle's 10:00 feeding, Lee checked Elle's tummy to see if there were any residuals in her tummy. It's one of the things we have to do with Elle's button to be sure it is in her stomach. If it is in the correct position, milk will be pulled back into the syringe. When Lee checked it - he couldn't even pull the syringe back. He re-positioned Elle and nothing came out. We immediately packed Elle up and headed for Texas Children's. We got to the emergency room at 11:30pm. We were taken to a room and several hours later, Elle was taken back for x-rays to check the position of the tube. Lee stayed with Elle while she was having her x-rays done (hence the cool pink vest).
Sunday, July 12, 2009
After our quick swim, it was time to go home and get our little princess fed. We got to visit a little more with Shannon before she had to head back to her parents house. I miss my wonderful friends so much, but weekends like last weekend and this weekend make me realize just how special true friends are. Elle is so incredibly lucky to be surrounded and loved by strong, Christian, smart, vibrant, funny, loving and amazing people. We are so blessed to have these people in our lives. It was such a wonderful weekend!This coming week is our first week in a long time without any doctor appointments. I am praying for a very quiet week. Elle's cousin, Witt, underwent heart surgery this past week. We are praying for his recovery and for his wonderful family's peace and strength.