Wednesday, September 30, 2009
Tuesday, September 29, 2009
Monday, September 28, 2009
Our wonderful night nurse last night that gave Elle a bath last night and then had her dressed in pink socks and a pink bow for us this morning when we walked into her room
My darling husband who this morning in an attempt to appease Elle, gave her the tubing from her blood pressure cuff to hold because if he gave her his finger, he would have had to stay all day (she has a pretty tight grip when she is holding your hand!). He gave it to her this morning at 8am and when we left her room at 11pm - she was still holding on to it!
Those big blue eyes from the most precious baby! My heart melted every time she woke up today and would look at me with those adorable eyes
Elle looking at me while I signed to her. My signing skills are limited but whenever she would wake up I would tell Elle "I love you" and tell her she is such a beautiful, smart, silly girl.
Elle's precious pouty lip that would stick out when she was mad. I love that little lip and while my heart breaks every time she tries to cry and no sound comes out, I still smile at that precious little lip.
We continue to pray for God's perfect timing for our little princess. He knows when she will be ready to come off the vent. He knows when she will be ready for food. He knows everything about her and all we have to do is follow Him to see where the path will go!
Sunday, September 27, 2009
Saturday, September 26, 2009
CV ICU on September 24, 2009 - hours after surgery - all the tubes and wires are covered up because her body temp was low..but they had to keep the incision site un covered
Friday, September 25, 2009
Thursday, September 24, 2009
Wednesday, September 23, 2009
Tuesday, September 22, 2009
Elle in her exersaucer on August 26, 2009 - not a happy camper (you can see her little t-rex arms!)
Elle in her exersaucer on September 22, 2009 - reaching for toys and actually enjoying herself!
We go in tomorrow for all the pre-op testing and then surgery will be on Thursday. This evening I am packing up all our stuff. I'm not a light packer - so Elle already has 3 bags packed (and she's going to be in only a diaper for a while after surgery)! I know tomorrow is going to be a long day but we have friends and family in the hospital already so it will be nice to be able to swing by their rooms and say hello. The bonds of having sick children are incredible. We might not all be going through the same thing but we all know the pain that our children are going through - that we're going through - but more importantly - we all know the pure joy and amazing love our children bring to our lives.
Sunday, September 20, 2009
Saturday, September 19, 2009
Wednesday I dressed Elle up in her "Future Houston Cougar" outfit. Lee graduated from the University of Houston and we will be in the hospital when the Cougs take on the Texas Tech Red Raiders - so I wanted to show her UH spirit a little early!
Thursday I spent all day at work tying up loose ends and getting ready to be gone from the office for a while. When I got home Thursday night, Elle and I spent some quality time playing together before bed time. I cut all my hair off in preparation of our hospital stay. I figured short hair is a lot easier to take care of than long hair and if this stay is like our last stay - there are going to be days when I wake up and end up staying in my pajamas all day long because of all the doctors coming into our room (which means no time to wash and style my hair)!
Outfit # 1 of the day (she had a few today!)