Once again, Christmas time is here…It’s time to recollect all that happened this year. Highs and lows, but no love was lost…Friends and family helped no matter the cost. The Rebels beat the Red Raiders as the year started out…Three short months later I was awakened by a shout. Early Monday morning on March 23…Lisha said those four little words. "My water just broke" is what she said…I jumped up in a flash and got out of bed. We packed our bags for what we thought to be a week… Put the dogs outside and cleaned the dishes in the sink. Sixteen hours later our new life would start…Little Eleanor Crosby was born with a broken heart. Nostrils to no where, syndromes, seizures and scans…We gave it all up to God, it is in his hands. Stents in her nose and a heart with a Gortex hose…We thought to ourselves "we have a long way to go." The Lord held her close and helped her get strong…He held us close too as we moved along. Two long months later with a feeding tube in…We were finally discharged and home life begins. Mommy, daddy and baby too…Reggie and Duchesse wondering "who the heck are you?" Four months flew by with one trip to the E.R…Then we were headed back to the hospital with a loaded car. It was time to have Elle Belle's little heart fixed…Lisha and I knew this time that it wouldn't be quick. Twelve hours of surgery and a six inch scar…Fifteen long days later we were back in our car. Home again, home again with tears of joy we sang…Two months later the TV crews came. The story of Elle is what they wanted to hear…And the Wee Dream fundraiser that was very near. Friends, family, golf and great food…It was also Elle Belle’s public debut Money was raised and trips were won…An unpayable debt for all that was done. Three Halloween costumes and a first Thanksgiving too…We stayed at home to avoid the flu. As we come to Christmas and the end of the year…We thank everyone that has become so dear. Prayers and letters from here and there…Simple gestures and calls from those who care. Many thanks for all your prayers and generosity…It means so much to our little family. Thank you Lord for my little baby and wife…Merry Christmas to all and to all a good night! Merry Christmas! Love, The Luphers Lee, Lisha, Elle, Reggie and Duchesse
Friday, December 25, 2009
Thursday, December 24, 2009
We have a 9 monther on our hands!! I can't believe our sweet baby Elle is 9 months old! How time flies!! What is Elle up to these days?
Tuesday, December 22, 2009
Elle and I had a pretty scheduled day today. We had an 8am appointment here at our house for an evaluation with ECI. The evaluator just came in and watched Elle be her usual crazy self. She has seen Elle 3 times and was thrilled with how she has progressed over the last few weeks. We scheduled appointments for 3 (yes 3) more evaluations in the next month. After all the excitement of having a visitor this morning, Elle fell asleep for a whopping 2 hours. That was a first! I didn't know what to do with all my time! I kept going in and checking on her because I just couldn't believe she was still asleep. By the time she woke up, it was time to feed her again.
Oh but she was in no mood to be fed - she was wild and ready to go! The crazy kid spent an hour in her exersaucer while she was being fed - jumping up and down and hollering at all her toys. I rigged up a little loop to slide her feeding tube through so as she moves around in her exersaucer - her feeding tube moves with her. I know one of these days all her jumping up and down while she is feeding is going to be a recipe for disaster and I will be cleaning baby puke off of everything! When that was finished it was off to physical therapy. Elle is doing great - she still can't sit up on her own yet but we're working on it! From where she was even 2 weeks ago to where she is now is tremendous improvement. One thing is for sure - she has the rolling thing down!
I guess I noticed it on Sunday but Elle really will have her 2 front teeth for Christmas! There is another little fraggle coming in on the bottom!
There is so much to do between now and Christmas day! Elle still has a few more Christmas outfits left to wear so we will be having a few wardrobe changes a few times a day so we get in all her super cute outfits! I was going to share something that happened while I was out Christmas shopping this past Saturday. I was at a store where all 3 people working were men. It's a little store and they take pride in taking a few minutes to talk to each customer. When I was finished talking to the guys (one of them plays golf at New Mexico Military Institute so we were talking golf...) I told them to all have a Merry Christmas. One of the older gentlemen stopped and said "what did you just say?" I said "Merry Christmas." He said "thank you so much for saying that. Where my wife works - they aren't allowed to say that. It's nice to hear that." I told them man that I am a HR manager for a local company and we say Merry Christmas. We even have a big banner on the fence of our office that says Merry Christmas. It made me sad walking out of the store that people are too afraid or prohibited from saying Merry Christmas. From my work background, I understand why places have to do it but we fully believe "For unto us a child is born, unto us a son is given, and the government will be called upon his shoulders. And he will be called Wonderful Counselor, Mighty God, Everlasting Father, Prince of Peace." (Isaiah 9:6) And while it may appear that all of Elle's outfits are the reason for the season - we truly know that Jesus is the REAL reason for the season!
Monday, December 21, 2009
Sunday, December 20, 2009
Sunday, December 13, 2009
Please disregard my very high pitched voice! I was so excited for our little Elle Belle.
The weather in Houston has been absolutely disgusting the entire weekend. It hardly put us in the mood to decorate our house...plus...it is so hard to leave Elle even to go into the front room or outside to decorate. She loves to roll around on the floor between the dogs and we just love to watch her!
Thursday, December 10, 2009
Elle had her second swallow study today at TCH. It went extremely well and put to rest some of my fears. Ever since surgery, she hasn't taken a bottle - at all. She may take 10cc by mouth and the rest she gets through her feeding tube. I was worried that being intubated for a little over a week had caused some damage to her throat that was hindering her swallowing. Thankfully, the swallow study showed that Elle's swallowing is great. She isn't aspirating (liquid or solid going into her lungs) which is a great thing. The therapist did note that her tongue is hindering her ability to eat - take a bottle - breast feed. She thinks that once she gets her frenlum snipped, she will be able to eat a lot more. Elle is exhibiting all the signs the therapist looks for - she started to eat the shoulder straps in the seat she was sitting on, she was holding her pacifier in her mouth, she was eager for the spoon and eager for the bottle...it's the ability that needs some work. It was so reassuring to hear that she thinks Elle is doing good for what she is working with. In her exact words "I've never seen a tongue more restricted." She suggested that we just skip the bottle all together and move to a sippy cup. She said that Elle is old enough and her swallowing is good - so we are going to give that a try along with continuing with baby food. Yeah for progress! When they were finished with the study, Elle was a mess! The barium they used for the x-rays was all over her! The therapist requested a picture of our little Elle Belle to use for a presentation. She thought Elle was just the cutest little girl. Of course, we do too!
After the swallow study, I had to pump so we headed to the milk bank. Elle was talking up a storm! I love that little voice and big smile!
When we finished there, I was starving so we went to the food court at the hospital. By this time it was after 2:30pm so the place was empty. In one area of the food court there is a water wall you can walk under. Elle was mesmerized. She was such a great little patient today!
Wednesday, December 9, 2009
Saturday, December 5, 2009
Friday, December 4, 2009
Any suggestions or ideas on how to feed our little wiggle worm?